WEBINAR CATEGORY: PROFESSIONALS

Click on each speaker to find out more...

Alison Blaney-Wombwell
Alison Hart
Dr Amanda Furness
Aniesa Blore
Cathleen Long
Christopher Barnett
Corinna Wood
Dr Judy Eaton
Libby Hill
Mark Botfield

Alison Hart

Webinar: The understanding of Sensory Processing to enable function, for children and young people with PDA presentation

A deeper understanding of how sensory processing can impact behaviours, learning and ability to engage.  An understanding as to the role of sensory processing in making our world a complex and potentially overwhelming place that can leave us feeling out of control and avoidant.  The presentation will also introduce strategies towards making a difference for the child/young person.

Bio

Alison Hart is an Occupational Therapist and Associate Lecturer for the University of Derby.  After 20 years in the NHS, Alison left to set up in independent practice to fill a gap in services with particular consideration to complex needs, Autism and Sensory Processing.  Alison Hart founded Children’s Choice Therapy service in 2010 and this is now a company of specialist OTs working across education, social care, health and looked after care, as well as independent commissioning from parents. The OTs work across the community, special schools and in our specialist Ayres Sensory Integration and Occupational Therapy Centre in the Midlands.

What is your link to PDA?  (Parent, professional)

Professional

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

Families, young people and carers. 

Sensory Processing and functional motor and perceptual assessments, looking at barriers to function and everyday activities.  Treatment and training is also provided.

Who will benefit from your presentation?

Parents and Carers

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

Sensory Processing can impact feeding, sleep, personal care, sitting to task, engagement in tasks.  Assessment, advice and intervention has consistently impacted activities of daily living.

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

As OTs we also work with other barriers to function, such as motor co-ordination (including handwriting), and perceptual barriers.

Personal links

Website address - www.childrenschoicetherapy.co.uk

 

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Dr Amanda Furness

Webinar: PDA and EHCPs – understanding needs and effective provision

This session aims to explore effective support that should be considered as part of an assessment of need for children and young people with PDA or a similar profile. Every young person’s needs and associated provision will be different but this session aims to introduce you to a range of presentations and provision that can be considered, within the context of the EHCP assessment process. 

Bio

Dr Amanda Furness is an experienced Independent Educational and Child Psychologist with a particular interest in Social, Emotional and Mental Health (SEMH) needs. She has worked extensively with young people with a PDA profile of need. She provides a range of services with a focus on achieving positive outcomes for children and young people with a range of additional needs or who may be experiencing difficulties in education through her independent practice, Aspire Educational Psychology Services.

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

I work with a range of children, young people, professionals and families to enable effective support across a range of needs. I am typically involved in assessing needs and recommending effective provision but also provide intervention sessions and training. My knowledge of the EHCP assessment process enables me to provide assessments of need that can be used to inform this process and achieve a detailed plan to support young people going forwards.  

Who will benefit from your presentation?

Professionals working with children and young people with PDA or similar presenting needs. Parents of young people with PDA or similar presenting needs. Parents going through the EHCP process.

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

I offer a wide range of services, including training for staff and parent workshops. Details are included on the website but bespoke services can also be arranged. I also have a range of short online training courses that are available to access at www.aspire-ep.co.uk.

Any additional information you would like to add?

Aspire EP Services is based in Essex and covers the South East of England for face-to-face work in schools or a clinic setting. However, additional services are available remotely for clients who are further afield. 

What is your link to PDA?  (Parent, professional)

Professional

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

Parents, children and young people, staff and other professionals. I provide training, consultation and assessment amongst other services.

Link to newsletter: https://www.aspire-ep.co.uk/

Personal links

Website address - www.aspire-ep.co.uk

Facebook - https://www.facebook.com/aspireeps/

 

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Aniesa Blore

Webinar: Parenting the conundrum child

“There's nothing wrong with your child! Stop worrying!” No matter how often your friends and family may say this, if you know that your child is developing differently from their peers, it's time to stand up for your Conundrum Child.

Occupational Therapist and author Aniesa Blore will deliver practical tips for equipping parents and children with unique abilities, with the skills they need to allow themselves the grace, authority and self-determination to be the rock stars they are.

Bio

Aniesa completed her degree in Occupational Therapy in 1999 at the University of Stellenbosch, in South Africa. She has since been focusing on paediatrics and sensory processing and integration. She has worked across a range of paediatric fields and has extensive experience in children’s issues from autism to learning difficulties. Her speciality areas of practice include Sensory Processing Disorder, Autism Spectrum Disorder, Developmental Delays and Dyspraxia. Aniesa has extensive experience in using standardised and non-standardised assessments for establishing a baseline on which intervention can be delivered and continually evaluated.

Who will benefit from your presentation?

Everyone who comes into contact with the world’s brilliant Conundrum Children - from parents and teachers to wider family members and even other therapists.

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

From meeting early developmental goals to going to school, Aniesa helps parents and children gain independence and navigate the challenges of everyday life. She helps with:

  • Spotting signs that your child might need extra support
  • Practical advice on engaging with the professionals
  • Better connecting with your child (and with your own needs)
  • Mastering motor skills and sensory development
  • Meeting the challenges of everyday transitions, from school to playdates
  • Where to go for support and advice
  • If and when to consider medication

Aniesa’s techniques form part of a framework called C.A.N. - which stands for Connect, Achieve and Navigate - and which provides parents with a step-by-step, practical approach to help their children thrive. The presentation will be peppered with examples of children who have benefitted from the C.A.N. approach.

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

As well as better connecting with your children, Aniesa’s advice covers self-help too - suggesting that successful parenting starts with connecting with yourself and understanding your own emotional needs and goals.

Any additional information you would like to add?

Conundrum Children are often overlooked. Their difficulties are often not severe enough to have a formal diagnosis - or to qualify for funding and support. But they’re not developing at the same rate as their peers, and find dealing with everyday life challenging. Aniesa wants to shine a light on this ‘grey area’, which is so underserved by medical professionals and parenting experts - and finally provide the help and support our Conundrum Kids and their parents need.

What is your link to PDA?  (Parent, professional)

I am an OT

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

I work with young people, parents and schools.

Book Title: PARENTING THE CONUNDRUM CHILD – The CAN do approach to uncovering their unique abilities

Personal links

Website address - www.Aniesablore.com

Instagram - https://www.instagram.com/aniesabblore/?hl=en

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Cathleen Long

Webinar: Joint talk with Dr Judy Eaton - Fabricated or Induced Illness (FII) – what it is and how to survive when accusations are made

"The aim is to provide an insight into the assessment of children, adults, and young people with PDA and how parents self-reporting their child’s difficulties can sometimes be misconstrued as Fabricated or Induced Illness (FII). 

The purpose of this presentation is to highlight what FII is and what it is not. Furthermore, we will cover how neurodivergent parents can inadvertently tick the boxes for FII, particularly when professionals fail to recognise their difference. We will also address the issue of parental conflict and differing opinions about their child's presentation can inadvertently support the notion of FII". 

Bio

Cathleen is an award-winning independent social worker who regularly undertakes social care assessment of children and adults with additional needs. She has extensive mental health experience and is a licenced Functional Fluency coach and in her third year of training as a Transactional Analyst with Contact Point in Bristol. Cathleen is passionate about social work with her focus on sound, ethical practice, where she works hard to ensure a person’s assessed needs are at the forefront of any decisions made. She is currently writing the British Association of Social Workers Practice Guidance on Fabricated or Induced Illness with a team of highly acclaimed experts.

Who will benefit from your presentation

Parents, caregivers, professionals and anyone curious about PDA

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

I regularly assess children and young people to inform the social care provisions within their Education, Health, and Care Plans. I am a highly experienced and skilled practitioner, who is intuitive and knowledgeable, and can accurately encapsulate the essence of the person being assessed within my reports, thus ensuring they are provided a service which meets their needs. My loveliest outcomes are in giving a voice to those who have not been listened to, including the parents/caregivers of children and young people with additional needs.

What is your link to PDA?  (Parent, professional)

Professional 

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

Children, young people, parents and professionals

Newsletter - www.vivacitysocialwork.co.uk

Personal links

Website address - http://www.vivacitysocialwork.co.uk/

 

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Christopher Barnett

Webinar: Meeting the PDA Young Person's Needs

Obtaining support – and ensuring that it is the right support – for a child with special educational needs can be a struggle, and while some schools and local authority education departments will work with families, others can put up roadblocks or delays in providing support.  This talk will discuss the legal framework regarding support in schools, and what steps parents and young people can take to enforce their rights and secure the provision that they need.

Bio

I am a Senior Associate Solicitor at Sinclairslaw, specialising in Education Law with over 15 years' experience in advising on all aspects of special educational needs law. I deal with all forms of appeals and claims that are heard by the Special Educational Needs and Disability Tribunal, and regularly represent parents in hearings at the Tribunal, as well as being frequently instructed on Judicial Review proceedings in the High Court.

Who will benefit from your presentation?

Parents and families of children and young people with PDA, advisors and support workers. 

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

As solicitors, we will most commonly be involved when there are legal proceedings, such as appeals to the First-tier Tribunal regarding Education, Health and Care Plans. We can also deal with issues earlier as well and provide legal advice to try to resolve matters with schools or local authorities. Most commonly we will be dealing in appeals with either obtaining additional support or therapy provision for a child, or securing a suitable school placement if a Local Authority has proposed somewhere that is not appropriate. 

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

We advise on all areas of education law, and so can assist with other issues such as admissions or exclusions from school (which will be touched on briefly but is not the focus of this talk), transport to school, and school complaints. 

What is your link to PDA?  (Parent, professional)

Professional

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

Primarily with Parents, providing legal advice regarding special educational needs generally, and in particular with regard to Education, Health and Care Plans and Tribunal appeals

Personal links

Website address  - https://www.sinclairslaw.co.uk/meet-the-team/chris-barnett

 

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Corinna Wood

Webinar: Understanding the Changes of Transitions

Transitions can be really tricky for our PDAers. This workshop aims to consider:

  • What do we mean by transitions?
  • The role of ‘intolerance of uncertainty’
  • Executive functioning
  • What helps?

You will leave the workshop with a better understanding of how to support young people to transition from one activity to another, and some practical strategies to try.

Bio

I am an independent consultant and trainer working within the field of neurodiversity.  My passion comes from my experiences as a parent navigating the education and support systems for my four amazingly diverse children. They have taught me compassion, patience and have given me the ability to view the world through a different window. 

More recently I have worked as a Disability Consultant providing assessments of autistic parents to ensure their needs are understood.

Who will benefit from your presentation?

Both parents and professionals

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

Typically, my work focuses on parenting strategies and understanding behaviour in PDA, Autism and ADHD. I have recently worked with a family and as a direct result of my support, they have seen a decrease in the number of aggressive outbursts in the home and family relationships have improved. The family were at risk of family breakdown. This has been through increasing knowledge of PDA within the family and implementing PDA specific strategies.

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

My work is broad and I offer support regarding parenting and behaviour.  I can also carry out direct work with children and young people around self-awareness, anxiety and self-esteem. I have recently trained to become a CUES therapist. This is a new course developed by Newcastle University to support parents of highly anxious autistic children.

What is your link to PDA?  (Parent, professional)

As a professional I have a MA in Autism with a focus on parenting children with autism. I have worked with families for almost 20 years. I have developed training workshops in autism, ADHD and PDA. I have produced parenting skills reports and summary assessments for families where there is PDA.

As a parent, I have four children with autism, with two having a PDA profile

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

I work with Parents, young people and professionals. Providing advocacy and a voice to children and young people. I work with professionals to raise awareness.

Book Title: Paddy the Platypus Likes Pants

Personal links

Website address - http://platypustraining.org/

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Dr Judy Eaton

Webinar: Joint talk with Cathleen Long - Fabricated or Induced Illness (FII) – what it is and how to survive when accusations are made

"The aim is to provide an insight into the assessment of children, adults, and young people with PDA and how parents self-reporting their child’s difficulties can sometimes be misconstrued as Fabricated or Induced Illness (FII). 

The purpose of this presentation is to highlight what FII is and what it is not. Furthermore, we will cover how neurodivergent parents can inadvertently tick the boxes for FII, particularly when professionals fail to recognise their difference. We will also address the issue of parental conflict and differing opinions about their child's presentation can inadvertently support the notion of FII". 

Bio

I am a clinical psychologist with a special interest in neurodevelopmental disorders in both children and adults.  

I am also a Research Associate at King's College, London. 

I am currently working as an independent clinical psychologist. My team and I are regularly commissioned by both local Clinical Commissioning Groups and the NHS to carry out assessments on highly complex young people. Prior to this I worked within the NHS.  

I am passionate about advocating for families who may be struggling to find support and those whose children are described by others as ‘complex’ or ‘perplexing’.

Who will benefit from your presentation?

Parents and professionals

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

My team and I have assessed and diagnosed many children over the last six years (around 750) and provided on-going support to families and professionals.  I have also spoken at many events about PDA and about Autistic girls. 

What is your link to PDA?  (Parent, professional)

Professional

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

All

Book Title

A Guide to Mental Health Issues in Girls and Young Women on the Autism Spectrum: Diagnosis, Support and Intervention (Dr Judy Eaton)

Education and Girls on the Autism Spectrum: Developing an Integrated Approach (Judy Eaton chapter in J Hebron, Eds)

Personal links

Website address - https://help4psychology.co.uk/

Facebook - https://www.facebook.com/help4psychology

Twitter - https://twitter.com/Help4Psychology

 

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Alison Blaney-Wombwell

Webinar: Autism, Eating Disorders and Mental Health

I aim to help people understand how females with Autism can often go undiagnosed and misdiagnosed with other mental health conditions. I have lived experience of having Eating Disorders and we know that there is a correlation between Autism and Anorexia. For me Anorexia gave me control when everything around me felt out of control. It provided me with a routine and rules which I needed to help regulate my high levels of anxiety. I can help the audience have a better understanding of Autism and Mental Health, and how masking the underlying conditions I have has had a detrimental effect on my life

Bio

I am a dual diagnosed Female with Autism and Combined ADHD, I was diagnosed at thirty four after having my own daughters diagnosed. I was initially diagnosed with anorexia at fourteen, and before my dual diagnosis I thought I had bipolar disorder. Myself and my eldest daughter have a demand avoidant type Autism/ADHD Profile also. I am a Trainer, Coach, Consultant and writer in Autism and ADHD.

Do you work directly with parents and professions? How do you support them?

I work with families as an emotional regulation coach and autism/adhd consultant. I help to provide strategies around sensory issues, emotional regulation, executive functioning, demand avoidance and communication. I also work with professionals through training and consultancy.

What problems can you solve, please give an example of when someone has applied your advice and had great results

I have helped to provide input in formulation meetings with CAMHS. I have supported families who have girls/women with undiagnosed Autism/ADHD to go onto to receive their diagnosis and helped provide strategies to help support in both school and home.

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

Areas I can help:

Coaching in the areas mentioned above 

Training/Consultancy in Autism in Girls, Autism in the Early Years (Both my girls were diagnosed before their 4th birthday), Sensory Issues in Autism and ADHD (Including Interoception), ADHD (Full Day Programme Available)

including Internal Hyperactivity and RSD.

Any offers you would live to offer and promote 

Take a look at my newly launched Happy being me (Resources

from the book) shop on Etsy where Brain Dump Bullet Journals and other resources are now available to help support children and adults with both ADHD and Autism.

Book title : 

Happy Being Me - The Adventures of Kit and Fearne

Personal links

Website address - https://iamhervoice.co.uk/

Facebook - https://www.facebook.com/shehasmyheartiamhervoice

LinkedIn - https://www.linkedin.com/in/alison-wombwell-338413193/

Instagram - https://www.instagram.com/i_am_her_voice/

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Libby Hill

Webinar: Children who can talk but don't, and how do we support them

Libby Hill is an award winning speech and language therapist who specialise in PDA and Selective Mutism. She will discuss PDA and SM to explain what both are and the links between the two. Having PDA or selective mutism by themselves is difficult for others to understand but when both occur together, professionals especially, find it very difficult to know what to do to move forwards. Libby will look at how we need to support the child/young people for them to achieve their potential.

Bio

Multi-award-winning speech and language therapist. Libby has more than 35 years’ experience in her field. She works with autistic children, those with PDA and Selective Mutism. She belongs to the PDA professionals’ group, the PDA research group and the PDA working group who are trying to design  formulations for clinicians to determine PDA from demand avoidance.

Who will benefit from your presentation? 

Parents and staff of children/yp with PDA and SM

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

I want to increase understanding to help develop awareness

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

Any SLCN in general

What is your link to PDA?  (Parent, professional)

Professional

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

All

Up coming books: Parental perspectives of PDA to be published 2022 by Jessica Kingsley and The Selective mutism casebook  2021

Newsletter link: http://www.smarttalkersblog.com/

Personal links

Facebook - https://www.facebook.com/smalltalkspeechandlanguagetherapy

Twitter - https://twitter.com/SmartTalkers

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Mark Botfield

Webinar: Guardianship and Trusts for Parents and Carers of Vulnerable Persons

I want to raise awareness of the issues around guardianship and looking after assets for vulnerable people and the importance of planning these things in advance, making the necessary arrangements and not leaving it to chance.

Bio

Mark is an estate planner with 30 years’ experience in a variety of financial services roles.

Growing up with a parent who had mental health issues has given Mark an insider’s view of the problems that families face when dealing with long term illness and disability. 

Mark specialises in helping families facing similar problems whether by developmental, mental health or age-related causes.

Mark is married to Sarah and has a teenage son Daniel. When he is not helping people to plan for the future Mark enjoys good quality science fiction, rock music and DIY.

Who will benefit from your presentation?

Parents, Grandparents and Carers

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

I have recently assisted a family who have a son who has suffered brain damage and psychological problems resulting from an accident.  He is unable to manage financial and property matters on his own.  I have arranged lifetime trusts for his parents together with new wills that will ensure that the son is taken care of financially even after his parents can no longer help, be that as a result of death, old age or illness.  The lifetime trusts will also protect the family home, securing a place for him to live, either in the current house or the trustees may purchase a more suitable property for him.

The parents were concerned that their son would continue to have a home to live in no matter what happened to them.

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

I cover the full range of estate planning services which includes Wills, Trusts, Lasting Powers of Attorney, Probate and Contentious Probate, Funeral Plans and Inheritance Tax Planning

Any additional information you would like to add?

I offer a free, no obligation initial consultation.

For the duration of the back pocket pass, I am offering a 10% discount to any PDA Summit attendee, which will apply to all Wills, Trusts and Lasting Powers of Attorney.

What is your link to PDA?  (Parent, professional)

Professional  

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

I work with families to assist them with their estate planning.

I specialise in helping families where there is a family member who has issues with mental health, capacity or disability or development.

Working with parents and grandparents who are worried about how a child or grandchild will be looked after when they are gone.

Helping to ensure that guardianship wishes are properly established and financial provision made for the child’s future care.

Money and property for the child can be managed in trust, if necessary, for the rest of their life if they are not able to manage their finances.

Personal links

Website address - https://mbep.co.uk/ 

Facebook - https://www.facebook.com/mbep.co.uk 

LinkedIn - https://www.linkedin.com/in/mark-botfield-mbep/

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