WEBINAR CATEGORY: PDAers

Click on each speaker to find out more...

Harry Thompson
Jim Sahlsberg
Julia Daunt
Sally Cat
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Jim Sahlsberg

Webinar: Just me and my life as an adult with PDA

I aim to give people some insight into how to deal with children with PDA. I’m an adult with PDA and I work full time, so I’m keen to share my success story which I hope will help.

Bio

Hi, my name is Jim. I’m an adult with PDA and have been working full time for nearly 10 years.

My hobbies include playing guitar, screenwriting, working out and I love driving. And I’d love to help others who are in the same boat as me

Who will benefit from your presentation? 

Parents, teachers, care workers and ultimately PDAers who would struggle without the right support.

What problems can you solve? 

Well, I have overcome many obstacles to work my way up to full time work and living independently, which is positive proof that PDAers can have a bright future.

What is your link to PDA?  (Parent, professional)

I am an adult with PDA

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Julia Daunt

Webinar: My Experience with Professionals

I hope that my experiences will provide a better understanding of the struggles of allowing professionals into your life but also show how positive it can be if handled correctly

Bio

I’m a 30-something adult living with diagnoses of PDA, ADHD and psychotic episodes. I’ve made it my life’s mission to share my story with anyone who will listen and to educate and raise awareness of PDA.

I’ve recently written a book, which will be published this August, and update my blog, memyselfandpda.com, as often as I can. I am very active in the Facebook support group community and also offer telephone/video call consultations to parents and professionals. I have spoken at the major UK PDA Conferences and helped organise several smaller events. To know more about booking me, please get in touch.

Who will benefit from your presentation? 

Parents, professionals and individuals with PDA (basically, everyone!)

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

I can suggest and recommend strategies to reduce anxiety in children with PDA. For example, putting ‘please’ at the start of a sentence – not the end - lets the child know that a demand is coming, so gives them more preparation time. Many parents have employed this approach and found it to be successful.

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

Effective PDA strategies; PDA and periods; Managing anxiety

Any additional information you would like to add?

I am available for telephone/video call consultations at £35 for 1 hr

What is your link to PDA? (Parent, professional)

PDAer

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

PDAer

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

All of the above, through my role in the support groups on Facebook, my speaking engagements and telephone / video call consultations

Book Title - Being Julia - A Personal Account of Living with Pathological Demand Avoidance

Authors - Ruth Fidler & Julia Daunt, Foreword by Dr Judy Eaton

Link:

https://www.waterstones.com/book/being-julia-a-personal-account-of-living-with-pathological-demand-avoidance/ruth-fidler/julia-daunt/9781849056816

Personal links

Website address - https://memyselfandpda.com/

Facebook - https://www.facebook.com/JuliaDauntPDA/

 

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Sally Cat

Webinar: Understanding Circadian Sleep Disorders

An animated presentation about two Circadian Sleep Disorders, DSPS (Delayed Sleep Phase Syndrome) and Non-24 (Non-24-Hour Sleep-Wake Disorder) exploring what the conditions are; what causes them; and the merits and pitfalls of available treatments.

Circadian Sleep Disorders commonly co-occur with PDA, and, like PDA itself, are much misunderstood and subjected to mass prejudice and discrimination. 

Animator and presenter, Sally Cat, who is an adult PDAer with co-occurring, life-long DSPS, draws her material from research for a book she is writing, entitled Circadian Impact, as well as her own personal experiences, and the broader experiences of fellow DSPS and Non-24ers with whom she has talked to in online groups.

The primary aim of the presentation is to increase much-needed empathy for those of us who cannot healthily rise and shine every day like larks. There is an additional caution about unintentional harm that can be caused by seeking to “cure” these conditions, instead of (again as for PDA) accepting them, no matter their inconvenience, and restructuring our lives to make space for sleep-wake cycles that are out of sync with society’s morning biased schedules.

Bio

I’m an adult PDAer author, illustrator, public speaker & animator, as well as the mum of a nine-year-old PDA girl. I publish illustrative memes describing PDA on my Facebook page.  I’m the author of ‘PDA by PDAers’, the first book about adult PDA, and ‘Pathological Demand Avoidance Explained’ which describes the inner experience of PDA through 75 illustrations. I am currently writing a book about Circadian Sleep Disorders, which frequently co-occur with PDA, and will be the focus of my presentation at this year’s summit.

Who will benefit from your presentation?

Parents and carers of PDA children and young people with Circadian Sleep Disorders, as well as professionals who work with them.

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

My information about Circadian Sleep Disorders in relation to PDA children and young people will enable parents, carers and professionals to understand why it is that some children have wayward sleep schedules; what it actually feels like to be a PDA child with an out-of-sync body clock; and the best way to respond if a child’s sleep-wake schedules mismatch society’s norm. My blog post on the subject, posted in 2019, has had 4 x more views than the most popular of my other posts. Posts I’ve made about Circadian Sleep Disorders on my Facebook page and in PDA support groups, have always been inundated with responses, often from parents, saying “at last I understand what’s been going on!”

What is your link to PDA?  (Parent, professional)

Adult PDAer mum of a PDA child

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

I advocate for PDA to both parents and professionals with my main focus on increasing empathy for adult PDA, which is too often overlooked.

Book titles - 1. PDA by PDAers and 2. Pathological Demand Avoidance Explained

‚ÄčPersonal links

Website address - http://www.sallycatpda.co.uk/

Facebook - https://www.facebook.com/SallyCatPDA/

 

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Harry Thompson

Webinar: A journey into the Autistic and PDA mind

As well as Invaluable insights into neurodivergent, and in particular, PDA experience, Harry’s talk, as you may expect if you follow Harry online, includes controversial humour & brutal honesty.

If you are thinking of watching Harry’s talk because you are looking for “practical methods and strategies to manage your child/student/friend/family member’s challenging behaviour”, you are in the wrong place. This talk will get you to see the world from a PDAer’s perspective and show you that shared goals and understanding are far more important and effective than "strategies''.

Bio

Harry Thompson is an Autistic and PDA Writer, Public Speaker, Educator, Self-Advocate & Consultant. He is the author of the bestselling book PDA Paradox: The Highs and Lows of My Life on a Little-Known Part of the Autism Spectrum. His audiences receive invaluable insights into neurodivergent experience, often delivered with controversial humour & brutal honesty.

Who will benefit from your presentation? 

Parents, Professionals, PDAers themselves.

What problems can you solve? Please give an example of when someone has applied your advice and had great results.

Harry allows his audience to explore PDA from an insider perspective. From the families he works with to the schools & professionals he trains, it’s never about advice or strategies, but much more an exploration to invoke understanding. The more you understand PDA and how the mind of a PDAer operates, the closer you are to the individual - and the more those 'strategies (whatever they are)' will simply fall into place and become second nature.

Are there any other recommendations you could give, or areas you can help with that you may not be discussing?

There are so many, this talk is just scratching the surface. I cover many areas pertinent to neurodivergent experience. If you really want to learn about PDA to gain a better understanding, listen to Neurodivergent & PDA

adults, watch videos, read blogs, attend autistic-led training.

Any additional information you would like to add?

As well as paid consultations to explore individual circumstances with families, professionals & autistic adults, I also have a ton of free content on my website, YouTube channel, Facebook, Instagram & TikTok. I would urge you to search, discover & learn – just don’t ask me too many questions (it’s quite demanding).

What is your link to PDA?  (Parent, professional)

Autistic/PDA Adult, Writer, Public Speaker, Educator, Advocate & Consultant

Who do you work with e.g. Parents, Young people, or professionals? If applicable how do you support them?

Parents, Professionals & young people

Book Title: The PDA Paradox: The Highs and Lows of My Life on a Little-Known Part of the Autism Spectrum

Personal links

Website address - https://www.harryjackthompson.com/

Facebook - https://www.facebook.com/HarryThompsonPDAExtraordinaire

Instagram - https://www.instagram.com/harrythompsonpdaextraordinaire/